Third Day "I need a miricle"
"And in your hour of desperation
Know you're not the only one
Prayin', 'lord above, I need a miracle.'"
Sometimes I want to scream at doctors. Their job is supposed to help people, but maybe, in this day and age where people sue over anything, it makes dotors reluctant to help. I don't know why doctors twist words and basically make things up. Why can't life be simple? Why can't you go into the dr office and they offer possibilities or solutions. I know many people with this illness that basically give up since dr after dr blows them off.
I started writing this on Monday after our initial consult. We met the doctor, I was optimistic, then we saw his report stating that we were trying to disprove my mom's illness, that she only had possible SMAS, and no apparent distress. I was ready to kick ass, but was unaware that things were going to get worse. We met with the vascular surgeon who proceeded to inform us that there is no obstruction of her duodenum therefore she does not have SMAS anymore. ?????? He also told us that she has wide open veins and arteries so there was nothing he could do. I lost it at that point which was my downhill slide for the day. He never printed off the CT report and I never saw it until after we left the GI's office. The GI repeated what we already knew from the vascular surgeon, but as soon as I read my mom's CT report I was shocked. It clearly stated that her left renal vein is being compressed!!! That is a related symptom to SMAS, nutcracker syndrome,.
So where do we go from here? Where do I go from here? My heart is heavy and tears keep welling up. In desperate need of a miracle. In need of someone, anyone that can help "cure" my mom. My mom is my world and I don't want to lose her.
I started writing this on Monday after our initial consult. We met the doctor, I was optimistic, then we saw his report stating that we were trying to disprove my mom's illness, that she only had possible SMAS, and no apparent distress. I was ready to kick ass, but was unaware that things were going to get worse. We met with the vascular surgeon who proceeded to inform us that there is no obstruction of her duodenum therefore she does not have SMAS anymore. ?????? He also told us that she has wide open veins and arteries so there was nothing he could do. I lost it at that point which was my downhill slide for the day. He never printed off the CT report and I never saw it until after we left the GI's office. The GI repeated what we already knew from the vascular surgeon, but as soon as I read my mom's CT report I was shocked. It clearly stated that her left renal vein is being compressed!!! That is a related symptom to SMAS, nutcracker syndrome,.
So where do we go from here? Where do I go from here? My heart is heavy and tears keep welling up. In desperate need of a miracle. In need of someone, anyone that can help "cure" my mom. My mom is my world and I don't want to lose her.
